It has been the busiest sleepless three weeks of my life but in the same breath how beautiful it is has been to have my heart home with me. On average Kylan has had about three appointments a week. We have had to follow up with his new pediatrician, pulmonologist and see his old surgeon who perform the two of the three surgeries he has had this year.The first week Kylan slept pretty well but after he had his 4 month follow up he began to get his nights and days crossed. I personally believe they injected him with some "keep mommy up drugs." The crazy thing about it is that the stressful or frustrating part is not Kylan keeping me up. It is the monitor and the oxygen tank! Kylan is doing very well on his oxygen level. He is only on 1/8 of a liter of oxygen assistance. He came home on 1/4 of a liter. However if Kylan kicks too hard or moves too much the monitor goes off as if something is wrong with little buddy. Thank goodness the long stay in the hospital has taught me what to look for as far as signs of a problem otherwise the alarm would drive me up the wall.
Two days ago Mr. Kylan had another set of surgery performed by Dr. Parker at Egleston. Mom and Dad took off from work and Niheim also came to show support the our little pumpkin. We were to arrive at the hospital at 7:15 am. The morning started with my alarm not going off so my mom woke me up around 6:45. We didn't get to Egleston until 7:45 after sitting in traffic and a being run down my a crazy road rage lady on 75N. I was grateful this morning that I don't have to fight such foolishness daily for the time being. Kylan had his hernia (which was in his groin area) and he also had his circumcision. These sets of surgery caused for Kylan to be place under anetheisia and he also had to go back on the ventilator. After two hours of waiting (napping) in the surgery waiting room, Dr. Parker called me out to let me know all went well and I would be able to see my little man shortly. We went to the room where we would stay over night and waited for Kylan to make his entrance. About 15 minutes later Kylan came in a little drowsy. The grandparents took over and got him settled in. When Kylan woke up I heard a cry from him that I never heard before. It was a cry of pain. The pain meds from surgery had worn off and the pacifier was not working! The nurse came to the rescue with old fashion baby Tylenol. It took about fifteen minutes to settle into his system and he was knocked out for a while.
We stayed the night and the nurses watched him to make sure he had no adverse reactions to surgery then we went home the following afternoon.
It was cool to visit Egleston again where Kylan was once in such a critical state and now to see how far he has come. We saw a few of his old nurses that were excited to see him again (a few pounds heavier). It was a pleasant visit.
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